There have been several changes around here in the last couple of days.
For starters, I got a new piece of NICU real estate. A crib!
I’ve also started wearing clothes again and baby blankets. As well as funny hats.
I’m breathing room air on my own and am so grateful to have everything off my face. My cardiac situation is stable. The cardiologists want me to weigh 11-12 pounds and reach at least 3 months before my open heart surgery. Ideally, we can wait even longer if I continue to put on weight and control my breathing. Every day, every ounce will improve my surgical outcome.
Mom and I are working hard on feedings. I will be up to my full amount at 11:00pm tonight. Hopefully, my central line will be removed sometime tomorrow. Look at my new bottle. My speech therapist gave it to me. Mom calls it the Becky Bullet. It really is adorable.
I work hard to take 5-10/mL by mouth and then receive the rest of my feeding through my G-tube. Mom is a real pro at setting up my feeding lines and no longer feels like she will faint when she touches me. A real achievement! I put on 150 grams over night and am now punching above 9 pounds.
We are waiting for our home equipment to be delivered to the hospital so Mom and my Mommo can be trained on this particular system. I will have a home nurse for the first month, just to check in on me a couple times a week.
The rumor around here is that I am getting close to discharge. Close in the NICU world means 1 week or so. There is a long list of discharge items to be addressed including passing a hearing test and car seat challenge. This involves being strapped into my car seat and and having a nurse observe my vital signs for 2 hours. Seriously.
Mom dreams of being home to watch the Notre Dame/Clemson football game on Saturday night. I dream of being held for hours on end by the rowdy 7 and my Dad. So I best get back to sleep and put on some more weight!