We just met with Dr. V. He said that Becky was a very complex case and there was a lot of cardiac failure. Her heart was much larger than normal. She had two huge holes between the upper and lower chambers. Dr. E had told me that children with Downs syndrome usually have normal valve anatomy. Unfortunately this was not the case with Becky. Her mitral valve is abnormal, very flimsy and thin, as well as small. Dr. V hopes for minimal leakage from this valve and for good growth. Now we wait to see how the repair consolidates and conforms to the heart over time.
There was also the presence of milky white lymph fluid in the lower cavity. Dr. V said that he has never seen this before. I’m still unclear what this means and samples have been sent for testing. It seems to have something to do with her feeding. She has mild regurgitation on both sides. Becky isn’t on much support right now but will remain intubated to keep her calm.
Overall Dr. V is pleased with the repair given that she is a complex case. The next 8 hours are critical. Hopefully she rests comfortable as the sutures begin to heal. We hope to see her in the next half hour.
7 thoughts on “Update #5”
So many prayers for you all……
We are so grateful and relieved, and continuing to pray over these next 8 hours. Your updates have meant so much; we are deeply grateful to Drs. V & E, I have a candle lit that won’t go out until we know Becky has crossed that important threshold. ❤️❤️❤️🙏🙏🙏❤️❤️❤️🙏🙏🙏❤️❤️❤️🙏🙏🙏❤️❤️❤️🙏🙏🙏❤️❤️❤️🙏🙏🙏
Sent from my iPhone
Praying for Becky!!!
Praying for all of you!🙏
[…] first operation was to repair an ASD and a VSD. The operation was significantly more complex than the surgeons expected. She recovered well and the Pulmonary Hypertension Team worked to […]