Sunday (February 28) was Josephine’s 16th birthday. She doesn’t like me to write about her on this blog.

But she made an exception for her birthday.
Read More »Sunday (February 28) was Josephine’s 16th birthday. She doesn’t like me to write about her on this blog.
But she made an exception for her birthday.
Read More »Yogi Berra famously said, “It’s déjà vu all over again.” While he was referring to Mickey Mantle and Roger Maris hitting home runs, for me, it’s more like “Another day, another hospital room.”
Becky was admitted to the PCICU last night after a concerning pediatric appointment and subsequent visit to the ER.
Here we go again.
Read More »Raising Becky, with her various medical issues and unique genetic profile, has required every bit of intelligence, organizational skill, and life hack at my disposal.
It’s also demanded a bevy of camp songs. Conveniently, I have quite the collection. And I have one woman to thank for my repertoire.
Her name is Sally Williams.
Read More »It’s been one week since Becky returned home after her open heart surgery. It’s been wonderful.
But it’s been hard. In fact, it’s the hardest thing I’ve ever done.
Read More »Today’s post is in the style of Margaret Wise Brown’s Good Night Moon. This classic bedtime story is fitting for this sleepy baby.
But it needed a little modification for her recent hospital stay .
Read More »People talk about “moving up” in the world. For Becky, “moving down” is the more appropriate goal.
Destination: “The Floor”, which is PCICU lingo for the regular pediatric floor in the children’s hospital.
Directions: Down a couple long hallways. A few turns. A short elevator ride.
Mode of travel: Little red wagon, of course.
Read More »Now that I’m feeling better, I’ve become rather expressive.
Smiles are free and talk is cheap. But I need people cribside to ensure my socialization needs are met. So I’ve developed a strategy.
Read More »I’m finally feeling well enough to restart my popular series.
Yesterday, I was hanging out with my pacifier when a nurse walked into my room. She handed my mom a small package.
Read More »Becky’s day was very full but I struggle to remember what happened.
Because today belonged to another little girl. Her name is Sterling.
Read More »Becky’s heart surgery was one week ago today.
To celebrate the day, she took a big step forward.
Read More »