We have finally been moved to our room on the regular pediatrics floor.Read More »
Becky is out of surgery.
She’s agitated and has some stridor but her stats are good. We’re enjoying a cuddle as I wait to speak with Dr. Sherman.
I’m sitting in the surgery waiting room. I finally had a chance to eat, wolfing down a salad and some hard boiled eggs. The warm latte is kicking in and I’m beginning to feel more human.
Nurse Kathleen just came through to update another family. She was Becky’s first PCICU nurse and took care of her in the delicate hours after the first open heart procedure. She came over for a quick hug and promised to stop by our room later.
There’s a terrible soap opera playing on the television. I can’t see the screen but it’s impossible to ignore. Apparently Carly wants the chief of staff position fierce and is double crossing her rival. And someone is trying to dump a body.
I’m keeping a close eye on the board. Becky is number 5411050 and I’m tracking her progress through the various stages. It’s like watching the board at the airport. I’m waiting for the landing.
Becky has been taken back to surgery.
I met with Dr. Sherman and he apologized for the delay. He said there are strict guidelines and procedures in place for complicated infants like Becky. Her age and cardiac condition necessitate certain OR personnel. And sometimes that doesn’t always come together on time. He anticipates that all three procedures will take about 1 hour (10 minutes for the tubes, 10 minutes for the bronchoscopy, 35 minutes for the brain stem response test). Becky will be admitted either to the pediatric floor or the pediatric ICU.
I am so grateful that she slept almost the entire morning. And that the hospital Starbucks is open for another 15 minutes.
The nurse manager just stopped by to tell us that Becky’s surgery is delayed. Dr. Sherman is running behind and there are some complications securing the anesthesiologist that Becky needs. He is currently operating in the Outpatient Pavilion but will come over to the hospital at some point. Hopefully, everything will happen around 2:00pm. Becky hasn’t had a feed since 7:00am but is holding up just fine. I just settled her down for a nap.
Our Keurig coffee maker refused to work this morning. Of all days. And the English Breakfast tea wasn’t quite strong enough. So I may join her.
Becky and I arrived at the hospital a couple hours ago.
I previously posted about Becky’s graduation from the Heart Fab Team. Now that her heart is repaired, the focus has shifted to other medical issues and therapeutic needs. An ongoing concern has been Becky’s hearing and swallowing.
Becky will undergo surgery #4 tomorrow to address problems with both.Read More »
I previously mentioned that we’ve traveled quite a bit this summer. And there hasn’t been room enough to pack this blog alongside luggage for 10. Either in the van or in my brain. So posts have been sparse this month.
But that doesn’t mean Johnny hasn’t generated a solid body of material. Much of it in the form of questions. And his questions usually begin with the word “so”.
So let me tell you about some rather direct questions he asked while on the road.Read More »
We’re in the midst of a season of travel. We’ve enjoyed trips to Michigan, Indiana, and Ohio. Becky is finally meeting extended family and friends. It’s been refreshing and uplifting. I will update on our travels at some point.
During a break at home, we managed to squeeze in a dinner with some good family friends. Although we live only mile apart, we haven’t seen them since last summer. It was a fantastic evening of food and fun. They’re the kind of friends where you pick up right where you left off. And our kids relate just like siblings. In the course of our time together, they made us an offer we couldn’t refuse.
It involved Rudy, the wonder dog.Read More »
To be honest, I wasn’t sure what to think of you at first. Great Aunt Jan introduced us the other week. Your cotton candy colored coat is rather bright. And you just stare at me, adding very little to our conversations. But you’ve grown on me and now we are fast friends.
I need to grab a quick nap. So please do me a favor. Keep an eye out and wake me if anything interesting happens. You seem uniquely suited to the task. I’ll be happy to do the same for you later this afternoon.